Home Exercise for Individuals with Neurodegenerative Disease

Part of paid clinical trials in Baltimore, Maryland.

Sponsor
Hugo W. Moser Research Institute at Kennedy Krieger, Inc.
Study ID
NCT05443906
Status
Recruiting

Conditions

  • Adrenomyeloneuropathy
  • Ataxia
  • Cerebellar Ataxia
  • LBSL
  • Leukodystrophy
  • Leukoencephalopathy with Brain Stem and Spinal Cord Involvement and High Lactate Syndrome (Disorder)
  • Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation
  • Neurodegenerative Diseases

Eligibility Criteria

Sex
ALL
Age
5 Years - 75 Years
Healthy Volunteers
Accepted

Interventions

  • Home exercise — BEHAVIORAL
    Exercise to address limitations impacting walking

Study Details

The primary goal of this study is to address the need for targeted therapeutic interventions for impairments that impact walking in related neurodegenerative diseases.

Key Dates

Start date
Feb 13, 2023
Status verified
Mar 2025
Primary completion
Jul 30, 2026
Completion
Jul 30, 2027

Study Design

Enrollment
30 participants (estimated)
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
TREATMENT

Arms

  • Experimental: Home exercise
    Individually designed home exercise program

Primary Outcome Measure

Change in NeuroQOL lower extremity [ Time Frame: baseline 12 weeks ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Kennedy Krieger InstituteBaltimoreMaryland21205
Amena Smith Fine, MD, PhD
443-923-3249
Jennifer Keller, PT
4439232716

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