UPenn Observational Research Repository on Neurodegenerative Disease

Part of paid clinical trials in Philadelphia, Pennsylvania.

Sponsor
University of Pennsylvania
Study ID
NCT04715399
Status
Recruiting
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Conditions

  • Alzheimer's Disease(AD)
  • Amyotrophic Lateral Sclerosis(ALS)
  • Corticobasal Syndrome(CBS)
  • Familial Frontotemporal Lobar Degeneration (fFTLD)
  • Frontotemporal Degeneration(FTD)
  • Lewy Body Disease(LBD)
  • Posterior Cortical Atrophy(PCA)
  • Primary Progressive Aphasia(PPA)
  • Progressive Supranuclear Palsy(PSP)

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Accepted

Interventions

  • No intervention — OTHER
    No intervention

Study Details

The aim of this study is to create a repository of both cross-sectional and longitudinal data, including cognitive, linguistic, imaging and biofluid biological specimens, for neurodegenerative disease research and treatment.

Key Dates

Start date
May 29, 2020
Status verified
Jan 2026
Primary completion
May 30, 2070
Completion
May 30, 2070

Study Design

Enrollment
1,000 participants (estimated)

Arms

  • Arm: Cross-sectional
  • Arm: Longitudinal

Primary Outcome Measure

Status of progression - changes in neuropsychological tests. [ Time Frame: This is a natural history study-participants are followed from date of enrollment until death, withdraw, or funding is no longer available, or until 600 months have passed. ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
University of PennsylvaniaPhiladelphiaPennsylvania19104
Gillian Bradley
[email protected]
215-349-5725
Dahlia Kamel
[email protected]

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