Ohio State University Multiple Myeloma and Amyloidosis Data Registry and Sample Resource

Part of paid clinical trials in Columbus, Ohio.

Sponsor
Ohio State University Comprehensive Cancer Center
Study ID
NCT01408225
Status
Recruiting
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Conditions

  • AL Amyloidosis
  • Monoclonal Gammopathy of Undetermined Significance
  • Multiple Myeloma
  • Plasma Cell Dyscrasias

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Not accepted

Interventions

  • tissue banking — PROCEDURE
    tissue procurement for this protocol will occur at the time of initial diagnosis, during routine follow-up, or at the time of relapse.

Study Details

The investigators are researching patients with diseases of their plasma cells in order to improve their quality and length of life. The investigators have created a database of patient information, blood samples, and bone marrow tissue in order to achieve the following three goals: * Surveillance: The investigators want to track what treatments patients get or don't get, how effective they are, how they feel, what complications they suffer, how long they stay in remission, and how long they live. * Contact: Because myeloma and amyloidosis are rare, less than 700 patients are diagnosed in the state of Ohio each year, patients often feel they don't have accurate information. The investigators want to provide them access to our clinical team (both phone and email consultations, even office visits for patients that can come to Columbus) as well as information regarding informational events pertaining to your disease and local support groups. * Research: Because nearly all myeloma and amyloid patients relapse and treatment is eventually unsuccessful, our focus is to develop more effective treatments that not only prolong life, but cure the disease. Periodically the investigators will inform them about clinical trials studying new drugs or treatment paradigms.

Key Dates

Start date
Mar 17, 2011
Status verified
Mar 2026
Primary completion
Mar 31, 2050
Completion
Mar 31, 2050

Study Design

Enrollment
5,000 participants (estimated)

Primary Outcome Measure

Develop a data and sample resource that can be used to facilitate research with the ultimate goal of reducing the morbidity and/or mortality of patients diagnosed or living with Multiple Myeloma in the state of Ohio [ Time Frame: up to 3 years ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Ohio State University Medical CenterColumbusOhio43210
Don Benson
[email protected]
614-293-3818
[email protected]
614-293-8858
Don Benson, MD (PRINCIPAL_INVESTIGATOR)

Find similar trials in Columbus, OH

By condition
Multiple myeloma
By specialty
OncologyBlood cancer
By research site
Ohio State University Medical Center· Columbus, OH

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