Prospective Home-Based Palliative Care and Hospice Study

Conditions

• Pediatric Palliative Care

Eligibility Criteria

Sex

ALL

Age

N/A - 19 Years

Healthy Volunteers

Not accepted

Interventions

• Study Surveys — OTHER
  Participants will complete study surveys as their participation in the research study. Study staff will collect clinical and demographic information from the electronic medical records. The enrollment in this intervention will not be decided by research enrollment, but would naturally occur regardless of enrollment in the study.

Study Details

The purpose of this study is to test the hypothesis that the addition of home-based hospice and palliative care (HBHPC) will provide a reduction in health care utilization, improve quality of life, and facilitate goal-concordant care that is superior to inpatient and clinic pediatric palliative care (PPC) alone.

Key Dates

Start date

Aug 1, 2024

Status verified

Oct 2025

Primary completion

Aug 31, 2026

Completion

Oct 31, 2027

Study Design

Enrollment

250 participants (estimated)

Arms

• Arm: High-access home-based hospice and palliative care (HBHPC)
  Patients with high-access to home-based hospice and palliative care (HBHPC) enrolled from three sites: Nationwide Children's Hospital, Columbus, OH (NCH); Akron Children's Hospital, Akron, OH (ACH); and Medical University of South Carolina, Charleston, SC (MUSC).
• Arm: Low-access home-based hospice and palliative care (HBHPC)
  Patients with low-access to home-based hospice and palliative care (HBHPC) (i.e., primarily or exclusively hospital-based services) enrolled from two sites: Nemours Children's Hospital, Wilmington, DE (Nemours); and Texas Children's Hospital, Houston, TX (TCH).

Primary Outcome Measure

Hospital Utilization Differences [ Time Frame: At enrollment and every three months for a two year period for a maximum of 24 months ]

Locations (1)

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