Pulmonary Fibrosis Foundation Community Registry

Part of paid clinical trials in Chicago, Illinois.

Sponsor
Pulmonary Fibrosis Foundation
Study ID
NCT05382572
Status
Recruiting
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Conditions

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Accepted

Study Details

Pulmonary fibrosis (PF) results from a diverse group of health conditions and affects the lives of patients (including those who are post lung transplant), caregivers and family members. The Pulmonary Fibrosis Foundation Community Registry will offer an online portal where participants can self-enroll and directly contribute information about their experience with PF to be compiled into a longitudinal data set for use by researchers.

Key Dates

Start date
Jul 11, 2022
Status verified
Apr 2025
Primary completion
Jul 1, 2027
Completion
Jul 1, 2027

Study Design

Enrollment
10,000 participants (estimated)

Arms

  • Arm: Patients
    An individual diagnosed with PF or ILD, including those who are post lung transplant.
  • Arm: Family Members
    A family member (defined as biological parent, full or half-sibling, or biological child) of an individual with PF or ILD.
  • Arm: Caregivers
    An individual who has cared (currently or in the past) for an individual with PF or ILD.

Primary Outcome Measure

Number of patients who have or had interstitial lung disease (ILD) enrolled in the PFF Community Registry [ Time Frame: 3 years ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Pulmonary Fibrosis FoundationChicagoIllinois60611
Kevin Flaherty, MD
[email protected]
844-825-5733
Kevin Flaherty, MD (PRINCIPAL_INVESTIGATOR)

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