Gene Therapy for IGHMBP2-Related Diseases

Part of paid clinical trials in Columbus, Ohio.

Sponsor
Megan Waldrop
Study ID
NCT05152823
Phase
PHASE1/PHASE2
Status
Enrolling By Invitation

Conditions

  • CMT2S
  • SMARD1

Eligibility Criteria

Sex
ALL
Age
2 Months - 14 Years
Healthy Volunteers
Not accepted

Interventions

  • Gene Therapy — BIOLOGICAL
    AAV9 carrying the IGHMBP2 gene.

Study Details

Open-label, single intrathecal injection study of a AAV9 vector carrying the IGHMBP2 gene for IGHMBP2-related diseases.

Key Dates

Start date
Nov 4, 2021
Status verified
Sep 2025
Primary completion
Jul 31, 2028
Completion
Jul 31, 2030

Study Design

Enrollment
10 participants (estimated)
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
TREATMENT

Arms

  • Experimental: Single Intrathecal Delivery

Primary Outcome Measure

Monitoring for the development of unacceptable toxicity. [ Time Frame: 3 years ]

Locations (1)

FacilityCityStateZIPSite coordinators
Nationwide Children's HospitalColumbusOhio43205-

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