DECIDE: Dyads and Families

Part of paid clinical trials in Washington D.C., District of Columbia.

Sponsor
Emory University
Study ID
NCT05139290
Status
Recruiting
Apply to this trial

Conditions

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Accepted

Interventions

  • Prototype Intervention — BEHAVIORAL
    The prototype intervention will be likely family-based and focused on issues of communication, problem-solving, health system literacy, and family systems, all considered in the context of the African-American (AA) adult daughter role and cultural identity.

Study Details

The purpose of this study is to design and test a decision-making program that is tailored to support adult daughters making healthcare decisions for their parents who are living with memory loss to improve the quality of life of African American families. There are two phases of this research study. The first phase will collect information by surveys and/or interviews. The surveys and interviews will ask questions about demographics (e.g., age, race/ethnicity), culture, health, family dynamics, caregiving, and healthcare experiences. The surveys will be completed by all eligible adult daughters and parents with memory loss in pairs. The interviews will be completed by a smaller number of pairs and by all former adult daughter caregivers. The general scope of topics is caregiving experiences, cultural identity, healthcare decisions for persons living with Alzheimer's disease, and related dementias, health, and well-being. The research team will identify and examine key factors that will lead to designing and testing the feasibility of a culturally tailored prototype intervention for African American dementia dyads/families of persons living with mild to moderate Alzheimer's disease and related dementias.

Key Dates

Start date
Jul 15, 2022
Status verified
Jun 2025
Primary completion
Dec 31, 2026
Completion
Dec 31, 2026

Study Design

Enrollment
40 participants (estimated)
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE

Arms

  • Experimental: Prototype Intervention
    The prototype intervention will be likely family-based and focused on issues of communication, problem-solving, health system literacy, and family systems, all considered in the context of the African-American (AA) adult daughter role and cultural identity.

Primary Outcome Measure

Participant retention [ Time Frame: eight weeks ]

Central Contacts

Locations (4)

FacilityCityStateZIPSite coordinators
Zeta Phi Beta Sorority, Inc.Washington D.C.District of Columbia20009-
Emory Healthcare Integrated Memory Care ClinicAtlantaGeorgia30329-
Emory University Goizueta Alzheimer's Disease Research Center Minority Engagement CoreAtlantaGeorgia30329-
Metro-AtlantaAtlantaGeorgia30340-

Find similar trials in Washington D.C., DC

By condition
Alzheimer's disease
By specialty
NeurologyDementia careBrain disordersGeriatrics
By research site
Zeta Phi Beta Sorority, Inc.· Washington D.C., DCEmory Healthcare Integrated Memory Care Clinic· Atlanta, GAEmory University Goizueta Alzheimer's Disease Research Center Minority Engagement Core· Atlanta, GAMetro-Atlanta· Atlanta, GA

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