Parkinson's Foundation PD GENEration Genetic Registry

Part of paid clinical trials in Birmingham, Alabama.

Sponsor
Parkinson's Foundation
Study ID
NCT04994015
Status
Recruiting
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Conditions

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Not accepted

Interventions

  • Lab Assay for seven genetic variants for Parkinson's Disease — DEVICE
    Counseling provided to participant by site clinician/physician/genetic counselor.

Study Details

Development of a central repository for PD-related genomic data for future research.

Key Dates

Start date
Dec 20, 2020
Status verified
May 2025
Primary completion
Jun 30, 2026
Completion
Jul 1, 2026

Study Design

Enrollment
25,000 participants (estimated)

Primary Outcome Measure

Prevalence of Parkinson's related genetic mutations in an convenience cohort [ Time Frame: 6 months ]

Central Contacts

Locations (54)

FacilityCityStateZIPSite coordinators
University of Alabama BirminghamBirminghamAlabama35294
Fariba Rahimi
[email protected]
Marissa Dean, MD (PRINCIPAL_INVESTIGATOR)
MD First ResearchChandlerArizona85286-
Barrow Neurological InstitutePhoenixArizona85013
Caitlin Goodman
[email protected]
Holly Shill, MD (PRINCIPAL_INVESTIGATOR)
University of ArkansasFayettevilleArkansas72701
Kennetha Newman
[email protected]
Rohit Dhall, MD (PRINCIPAL_INVESTIGATOR)
University of California San Diego (UCSD)La JollaCalifornia92093
Lisa Solomon
[email protected]
858-822-5873
Irene Litvan, MD (PRINCIPAL_INVESTIGATOR)
University of California Los AngelesLos AngelesCalifornia90095
Alexandra Shurlock
[email protected]
Jeff Bronstein, MD, PhD (PRINCIPAL_INVESTIGATOR)
University of California San Francisco (UCSF)San FranciscoCalifornia94143
Jill Ostrem, MD (PRINCIPAL_INVESTIGATOR)
University of Colorado AnschutzAuroraColorado80045
Janet Clarke
[email protected]
Jeanne Feuerstein, MD (PRINCIPAL_INVESTIGATOR)
Hartford HealthcareHartfordConnecticut06066
Brandon Canty
[email protected]
Joy Antonelle DeMarcaida, MD (PRINCIPAL_INVESTIGATOR)
Aventura Neurology - Visionary Investigators NetworkAventuraFlorida33180
Julie Schwartzbard, MD (PRINCIPAL_INVESTIGATOR)
Parkinson's Disease & Movement Disorder Center of Boca RatonBoca RatonFlorida33486
Karina Weldon
[email protected]
Stuart Isaacson, MD (PRINCIPAL_INVESTIGATOR)
University of FloridaGainesvilleFlorida32611
Amanda Fessenden
[email protected]
Irene Andonia Malaty, MD (PRINCIPAL_INVESTIGATOR)
University of MiamiMiamiFlorida33131
Oriana Tarabay
[email protected]
Carlos Singer, MD (PRINCIPAL_INVESTIGATOR)
Ihtsham Haq, MD (PRINCIPAL_INVESTIGATOR)
Henry Moore, MD (SUB_INVESTIGATOR)
Cleveland Clinic WestonWestonFlorida33331
Laura Duarte
[email protected]
Tarannum Khan, MD (PRINCIPAL_INVESTIGATOR)
Morehouse CollegeAtlantaGeorgia30314
Tamiko Durham
[email protected]
Chantale Branson, MD (PRINCIPAL_INVESTIGATOR)
The Queen's Health SystemHonoluluHawaii96813
Malika Faouzi
[email protected]
Michiko Bruno, MD (PRINCIPAL_INVESTIGATOR)
Fay Gao, MD (SUB_INVESTIGATOR)
Rush UniversityChicagoIllinois60612
Nathan Krinickas
[email protected]
Jacqueline Vanegas
[email protected]
Deborah Hall, MD (PRINCIPAL_INVESTIGATOR)
University of ChicagoChicagoIllinois60637
Tomas Mercado
[email protected]
Tao Xie, MD, PhD (PRINCIPAL_INVESTIGATOR)
University of Illinois-ChicagoChicagoIllinois60607
Vijay Palakuzhy
[email protected]
Yasaman Kianirad, MD (PRINCIPAL_INVESTIGATOR)
Northwestern UniversityEvanstonIllinois60208
Rachel Leewandowski
[email protected]
Niccolo Mencacci, MD (PRINCIPAL_INVESTIGATOR)
Indiana UniversityIndianapolisIndiana46202
Lauren Perrey-Moore
[email protected]
Elizabeth Zauber, MD (PRINCIPAL_INVESTIGATOR)
University of IowaIowa CityIowa52242
Heena Olalde
[email protected]
Annie Killoran, MD, MS (PRINCIPAL_INVESTIGATOR)
University of KansasLawrenceKansas66045
April Langhammerr
[email protected]
Rajesh Pahwa, MD (PRINCIPAL_INVESTIGATOR)
University of KentuckyLexingtonKentucky40506
Renee Wagner
[email protected]
Tritia Yamasaki, MD, PhD (PRINCIPAL_INVESTIGATOR)
Louisiana State UniversityShreveportLouisiana71103
Mackenzie Williams
[email protected]
Elizabeth Disbrow, PhD (PRINCIPAL_INVESTIGATOR)
Johns HopkinsBaltimoreMaryland21218
Ebubechukwu Onyinanya
[email protected]
Kelly Mills, MD (PRINCIPAL_INVESTIGATOR)
University of MarylandCollege ParkMaryland20742
Rebecca Weimer
[email protected]
Beth Israel Deaconess Medical Center (BIDMC)BostonMassachusetts02215
Jacqueline Forbes
[email protected]
David Simon, MD (PRINCIPAL_INVESTIGATOR)
BMC Community HospitalBostonMassachusetts02136
Madhuri Sangam
[email protected]
Anna Hohler, MD (PRINCIPAL_INVESTIGATOR)
Massachusetts General Hospital (MGH)BostonMassachusetts02114
Vanessa Ibrahim
[email protected]
Anne-Marie Wills, MD (PRINCIPAL_INVESTIGATOR)
Struthers Parkinson's Center - HealthPartners Park NicolletGolden ValleyMinnesota55427
Taylor Billeadeau
[email protected]
Martha Nance, MD (PRINCIPAL_INVESTIGATOR)
Rutgers UniversityNew BrunswickNew Jersey08854
Edward Scot Stenroos, MD
[email protected]
Gian Pal (PRINCIPAL_INVESTIGATOR)
University of New MexicoAlbuquerqueNew Mexico87106
Amanda Deligtisch, MD (PRINCIPAL_INVESTIGATOR)
Columbia UniversityNew YorkNew York10033
Alexander Haimovich
[email protected]
Linn Katus, DO (PRINCIPAL_INVESTIGATOR)
Mount SinaiNew YorkNew York10029
Susan Bressman, MD (PRINCIPAL_INVESTIGATOR)
New York UniversityNew YorkNew York10017
Kelly Astudillo
[email protected]
Giulietta Riboldi, MD, PhD (PRINCIPAL_INVESTIGATOR)
University of North Carolina - Chapel HillChapel HillNorth Carolina27599
Hans Nettescheim
[email protected]
Claudia Testa, MD, PhD (PRINCIPAL_INVESTIGATOR)
Atrium HealthCharlotteNorth Carolina28207
Gina M'Buyamba
[email protected]
Nicholas Fleming, MD (PRINCIPAL_INVESTIGATOR)
University of CincinnatiCincinnatiOhio45221
Kelly DeLano
[email protected]
Emily Hill, MD (PRINCIPAL_INVESTIGATOR)
Case Western Reserve UniversityClevelandOhio44106
Eileen Terrell
[email protected]
Steven Gunzler, MD (PRINCIPAL_INVESTIGATOR)
Cleveland ClinicClevelandOhio44195
Hubert Fernandez, MD (PRINCIPAL_INVESTIGATOR)
Ohio State UniversityColumbusOhio43210
Kate Ambrogi
[email protected]
Ariane Park, MD, PhD (PRINCIPAL_INVESTIGATOR)
Oregon Health and Science UniversityPortlandOregon97239
Emily Leonard
[email protected]
Joseph Quinn, MD (PRINCIPAL_INVESTIGATOR)
Thomas Jefferson UniversityPhiladelphiaPennsylvania19144
Michelle Roachman
[email protected]
Tsao-Wei Liang, MD (PRINCIPAL_INVESTIGATOR)
University of PennsylvaniaPhiladelphiaPennsylvania19104
Neda Almassi
[email protected]
Rebecca Williamson, MD (PRINCIPAL_INVESTIGATOR)
Medical University of South CarolinaCharlestonSouth Carolina29425
Sandra Wilson
[email protected]
Gonzalo Revuelta, DO (PRINCIPAL_INVESTIGATOR)
Vanderbilt UniversityNashvilleTennessee37235
Jacqueline Harris
[email protected]
Tom Davis, MD (PRINCIPAL_INVESTIGATOR)
Baylor College of MedicineHoustonTexas77030
Silvia Onofre
[email protected]
Nora Vanegas, MD (PRINCIPAL_INVESTIGATOR)
University of Texas at San AntonioSan AntonioTexas78249
Carolyn Paiz
[email protected]
Omalys Biggs Rodriguez
[email protected]
Oleni Okeanis Vaou, MD (PRINCIPAL_INVESTIGATOR)
Intermountain HealthMurrayUtah84107
Nic Unsworth
[email protected]
Kathleen McKee, MD (PRINCIPAL_INVESTIGATOR)
Virginia Commonwealth UniversityRichmondVirginia23284
Virginia Norris
[email protected]
Matthew Barrett, MD (PRINCIPAL_INVESTIGATOR)
Evergreen HealthKirklandWashington98034
Pinky Agarwal, MD (PRINCIPAL_INVESTIGATOR)
Inland Northwest ResearchSpokaneWashington99202
Amanda Kiefer
[email protected]
Jason Aldred, MD (PRINCIPAL_INVESTIGATOR)
Medical College of WisconsinMilwaukeeWisconsin53226
Jordan Bayola
[email protected]
Karen Blindauer, MD (PRINCIPAL_INVESTIGATOR)

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