Neurocutaneous Melanocytosis Registry

Part of paid clinical trials in Boston, Massachusetts.

Sponsor
Memorial Sloan Kettering Cancer Center
Study ID
NCT04548817
Status
Recruiting
Apply to this trial

Conditions

  • Cutaneous Melanocytic Neoplasm
  • Large Cutaneous Melanocytic Nevi
  • Neurocutaneous Melanocytosis

Eligibility Criteria

Sex
ALL
Age
N/A - N/A
Healthy Volunteers
Not accepted

Study Details

This study will involve collecting information about the regular medical care you receive for large cutaneous melanocytic nevi (LCMN) or neurocutaneous melanocytosis (NCM).

Key Dates

Start date
Sep 3, 2020
Status verified
Sep 2025
Primary completion
Sep 3, 2027
Completion
Sep 3, 2027

Study Design

Enrollment
100 participants (estimated)

Arms

  • Arm: Neurocutaneous Melanocytosis
    Participants will have Neurocutaneous Melanocytosis (NCM) Including Cutaneous and CNS Involvement

Primary Outcome Measure

Collect retrospective and prospective clinical, treatment and outcome data about patients with Neurocutaneous Melanocytosis (NCM) worldwide [ Time Frame: Up to 7 years ]

Central Contacts

Locations (2)

FacilityCityStateZIPSite coordinators
Boston Children's Hospital (Data Analysis Only)BostonMassachusetts02115
Elena Hawryluk, MD
617-355-6117
Memorial Sloan Kettering Cancer Center (All Protocol Activities)New YorkNew York10065
Yasmin Khakoo, MD
212-639-8292

Find similar trials in Boston, MA

By research site
Boston Children's Hospital (Data Analysis Only)· Boston, MAMemorial Sloan Kettering Cancer Center (All Protocol Activities)· New York, NY