Development of a Research Infrastructure for Understanding and Addressing Multiple Myeloma Disparities

Part of paid clinical trials in Sacramento, California.

Sponsor
University of California, Davis
Study ID
NCT04314752
Status
Recruiting
Apply to this trial

Conditions

Eligibility Criteria

Sex
ALL
Age
21 Years - N/A
Healthy Volunteers
Not accepted

Study Details

The objectives of the proposed study are to develop and evaluate protocols for ethnic/racial minority-specific research using cancer registry data. In conjunction with the Cancer Registry of Greater California (CRGC), the investigators have developed procedures to identify, recruit, and survey ethnic/racial minority patients with MM. To pilot the study, the investigators aim initially to test the feasibility of this protocol by contacting 400 eligible patients (100 African Americans, 100 Latinos, 100 Asian American/Native Hawaiian/Pacific Islander-AANHPI and 100 non-Hispanic Whites as a comparison group) to conduct a pilot survey through which will ascertain etiological and survival-related factors for MM. Ultimately, the investigators hope the findings from this pilot will yield insight into the best practices for recruiting minorities with MM and serve as the basis for larger population-based studies of MM etiology and survival. The next phase of this study is to expand the study to all 3 California Cancer Registries, including the Greater Bay Area Cancer Registry and the Los Angeles Cancer Surveillance Program and Cancer Registry of Greater California. We will increase the sample size to recruit atleast 1000 participants per racial/ethnic group. We will also request to increase the scope of the study to also continue a survivorship cohort.

Key Dates

Start date
Sep 1, 2020
Status verified
Sep 2025
Primary completion
May 30, 2026
Completion
May 30, 2026

Study Design

Enrollment
4,000 participants (estimated)

Primary Outcome Measure

Review the response rate of mailed out surveys, compared by race/ethnicity and disease status [ Time Frame: 2025 ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
University of California Davis Comprehensive Cancer CenterSacramentoCalifornia95817
Luis Carvajal-Carmona, PhD
[email protected]
530-752-9654
Angelica Perez, BS
[email protected]
9167344563

Find similar trials in Sacramento, CA

By condition
Multiple myeloma
By specialty
OncologyBlood cancer
By research site
University of California Davis Comprehensive Cancer Center· Sacramento, CA

Related Studies