Natural History, Diagnosis, and Outcomes for Leukodystrophies

Part of paid clinical trials in Salt Lake City, Utah.

Sponsor
University of Utah
Study ID
NCT03639285
Status
Recruiting
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Conditions

  • Leukodystrophy

Eligibility Criteria

Sex
ALL
Age
N/A - N/A
Healthy Volunteers
Not accepted

Study Details

The goals of this protocol is to diagnose, care for, and understand the clinical histories and outcomes of people with leukodystrophies.

Key Dates

Start date
Jan 19, 2007
Status verified
Jan 2026
Primary completion
Dec 31, 2033
Completion
Dec 31, 2050

Study Design

Enrollment
600 participants (estimated)

Primary Outcome Measure

Morbidity [ Time Frame: Participants will be followed for the duration of the study (up to 20 years), with checks on average of once per year ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Primary Children's HospitalSalt Lake CityUtah84113
Josh Bonkowsky, MD, PhD
[email protected]
8012133599

Find similar trials in Salt Lake City, UT

By research site
Primary Children's Hospital· Salt Lake City, UT

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