Clinical Procedures to Support Research in ALS

Part of paid clinical trials in Irvine, California.

Sponsor
University of Miami
Study ID
NCT03489278
Status
Recruiting
Apply to this trial

Conditions

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Not accepted

Study Details

The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.

Key Dates

Start date
Feb 15, 2018
Status verified
Mar 2026
Primary completion
Jun 30, 2026
Completion
Jun 30, 2027

Study Design

Enrollment
1,200 participants (estimated)

Arms

  • Arm: Affected
    Affected with ALS or a related disorder.

Primary Outcome Measure

Using the ALS Toolkit for collecting and using electronic health record data for research purposes [ Time Frame: 12 months ]

Central Contacts

Locations (11)

FacilityCityStateZIPSite coordinators
University of California, IrvineIrvineCalifornia92868
Mercedes Herrera
[email protected]
714-509-2665
Namita Goyal, MD (PRINCIPAL_INVESTIGATOR)
Stanford UniversityPalo AltoCalifornia94304
Rabia Farooquee
[email protected]
650-7098735
Mawell Greene, MD (PRINCIPAL_INVESTIGATOR)
California Pacific Medical CenterSan FranciscoCalifornia94115
Chow Saephanh
[email protected]
415-600-3935
Jonathan Katz, MD (PRINCIPAL_INVESTIGATOR)
University of MiamiMiamiFlorida33136
Jessica Hernandez
[email protected]
305-243-2345
Michael Benatar, MBChB, MS, DPhil (PRINCIPAL_INVESTIGATOR)
University of Kansas Medical CenterKansas CityKansas66205
Osvaldo Plascencia
[email protected]
(913) 945-9922
Jeffrey Statland, MD (PRINCIPAL_INVESTIGATOR)
Hennepin County Medical CenterMinneapolisMinnesota55404
Daphne Fruchtman
[email protected]
612-873-2607
Samuel Maiser, MD (PRINCIPAL_INVESTIGATOR)
Columbia UniversityNew YorkNew York10032-
Duke UniversityDurhamNorth Carolina27708
Hailey Zampa
[email protected]
Xiaoyan Li (PRINCIPAL_INVESTIGATOR)
Wake Forest UniversityWinston-SalemNorth Carolina27157
Lauren Richmond
[email protected]
336-716-9632
James Caress, MD (PRINCIPAL_INVESTIGATOR)
Providence Health & ServicesPortlandOregon97213
Nicholas Olney, MD (PRINCIPAL_INVESTIGATOR)
University of Texas San Antonio Health Science CenterSan AntonioTexas78229
Randee Kent-Baron
[email protected]
Carlayne Jackson, MD (PRINCIPAL_INVESTIGATOR)

Find similar trials in Irvine, CA

By research site
University of California, Irvine· Irvine, CAStanford University· Palo Alto, CACalifornia Pacific Medical Center· San Francisco, CAUniversity of Miami· Miami, FLUniversity of Kansas Medical Center· Kansas City, KSHennepin County Medical Center· Minneapolis, MN

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