The Congenital Dyserythropoietic Anemia Registry (CDAR)

Part of paid clinical trials in Cincinnati, Ohio.

Sponsor
Children's Hospital Medical Center, Cincinnati
Study ID
NCT02964494
Status
Recruiting
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Conditions

  • Congenital Dyserythropoietic Anemia (CDA)

Eligibility Criteria

Sex
ALL
Age
N/A - N/A
Healthy Volunteers
Accepted

Study Details

The investigators have created and maintain a comprehensive registry for patients with the diagnosis of Congenital Dyserythropoietic Anemia (CDA) in North America. The goal of this registry is to collect long-term confidential data on patients with CDA in the US, Canada, and Mexico and maintain a bio-repository of de-identified patient blood and bone marrow specimens as a tool for the investigation of epidemiology, natural history, biology, and molecular pathogenetic mechanisms of CDA.

Key Dates

Start date
Aug 29, 2016
Status verified
May 2025
Primary completion
Jul 31, 2026
Completion
Jan 31, 2031

Study Design

Enrollment
10,000 participants (estimated)

Primary Outcome Measure

Age and symptoms at presentation and/or diagnosis [ Time Frame: From study entry to >15 years ]

Central Contacts

  • Hotline
    513-636-6770

Locations (1)

FacilityCityStateZIPSite coordinators
Cincinnati Children's Hospital Medical CenterCincinnatiOhio45229
Hotline
[email protected]
513-636-6770
Theodosia Kalfa, MD, PhD (PRINCIPAL_INVESTIGATOR)

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Cincinnati Children's Hospital Medical Center· Cincinnati, OH