The National Amyotrophic Lateral Sclerosis Registry

Part of paid clinical trials in Atlanta, Georgia.

Sponsor
Centers for Disease Control and Prevention
Study ID
NCT01772602
Status
Recruiting

Conditions

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Not accepted

Study Details

The purpose of this registry is to (A) better describe the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, such as environmental and occupational, that may be associated with the disease; (C) better outline key demographic factors (such as age, race or ethnicity, gender, and family history of individuals who are diagnosed with the disease) associated with the disease; and (D) better examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.

Key Dates

Start date
Oct 31, 2010
Status verified
Apr 2026
Primary completion
Dec 31, 2040
Completion
Dec 31, 2040

Study Design

Enrollment
30,000 participants (estimated)

Primary Outcome Measure

The National Amyotrophic Lateral Sclerosis (ALS) Registry [ Time Frame: 1 year ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
CDCAtlantaGeorgia30333
Paul Mehta, MD
770-488-0556
Kevin Horton, DrPH, MSPH
770-488-1555
Paul Mehta, MD (PRINCIPAL_INVESTIGATOR)

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