Preterm Lung Patient Registry

Conditions

• Bronchopulmonary Disease

Eligibility Criteria

Sex

ALL

Age

N/A - N/A

Healthy Volunteers

Not accepted

Interventions

• Patient Registry — OTHER
  The CHILD Clinic Patient Registry is an observational study designed to identify epidemiologic and genetic factors associated with chronic lung disease in former preterm infants or those with lung disease in the neonatal period.

Study Details

The goal of the Preterm Lung Patient Registry is to collect data on individuals with neonatal lung disease to better understand the illness and ultimately improve their care and survival. The Patient Registry was established in 2008 as a means to monitor important trends in the BPD population and to improve understanding, treatment, and survival.

Key Dates

Start date

Jun 30, 2008

Status verified

Aug 2023

Primary completion

Jan 1, 2099

Completion

Jan 1, 2099

Study Design

Enrollment

1,500 participants (estimated)

Arms

• Arm: Bronchopulmonary Dysplasia (BPD)

Primary Outcome Measure

Lung function [ Time Frame: Lifetime ]

Central Contacts

• Lystra Hayden, MD, MMSc
  [email protected]

Locations (1)

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