Polycystic Kidney Disease Data Repository

Part of paid clinical trials in New York, New York.

Sponsor
The Rogosin Institute
Study ID
NCT00792155
Status
Recruiting
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Conditions

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Not accepted

Study Details

Autosomal dominant polycystic kidney disease (PKD) is the most common inherited kidney disease, affecting more than 400,000 people in the U.S. and 5 million people worldwide. PKD is the 4th most common cause of kidney failure requiring dialysis and/or transplantation. Over half of all PKD patients develop kidney failure by age 60 years, although age of onset of kidney disease varies widely, even among members of the same family. Despite the fact this is a relatively common problem, relatively few patients have been studied for a sufficient period of time to fully understand how patients are affected over the course of their lifetime. The reason for creating this repository is to collect information about PKD so that the investigators may fully understand its complications, including high blood pressure, heart attack, and stroke. This information may also aid in the development of improved treatment strategies.

Key Dates

Start date
Nov 30, 2002
Status verified
Nov 2025
Primary completion
Dec 31, 2030
Completion
Dec 31, 2030

Study Design

Enrollment
1,000 participants (estimated)

Primary Outcome Measure

Polycystic kidney disdease data repository [ Time Frame: 30 years ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
The Rogosin InstituteNew YorkNew York10021
Jon Blumenfeld, MD
[email protected]
212-746-1553

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