Identifying Genetic Causes of IC/BPS

Part of paid clinical trials in Boston, Massachusetts.

Sponsor
Boston Children's Hospital
Study ID
NCT00389142
Status
Recruiting
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Conditions

  • Bladder Pain Syndrome
  • Interstitial Cystitis

Eligibility Criteria

Sex
ALL
Age
1 Year - N/A
Healthy Volunteers
Not accepted

Study Details

Interstitial cystitis (IC), also called Bladder Pain syndrome (BPS) is a common condition with no known cause or cure. Twin studies and family accounts have suggested that the condition may be genetic or passed down (inherited) from one generation to another. In this study, the investigators are collecting genetic material via blood or saliva and medical information from families in North America in an attempt to identify genetic factors that may cause IC/BPS. The investigators are enrolling inviduals with IC/BPS and their family members (family members with and without IC like symptoms). Travel to Boston not required.

Key Dates

Start date
Jan 15, 2006
Status verified
Dec 2025
Primary completion
Dec 31, 2030
Completion
Dec 31, 2030

Study Design

Enrollment
1,000 participants (estimated)

Arms

  • Arm: 1 cohort
    All participants will undergo genome sequencing and urinalysis studies.

Primary Outcome Measure

observational study [ Time Frame: through study completion, average of 10 years ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Boston Children's Hospital (BCH)BostonMassachusetts02115
Elicia A Estrella, MS, LCGC
[email protected]
617-919-4552
Catherine Brownstein, PhD
[email protected]
617-355-4764

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By research site
Boston Children's Hospital (BCH)· Boston, MA

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