Periodontal Disease in Rare Renal Disorders (PERIO-RA-RE)
- Sponsor
- Stefan Lujinschi
- Study ID
- NCT07575347
- Status
- Not Yet Recruiting
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Conditions
- Alport Syndrome
- CKD
- Chronic Kidney Disease
- Fabry Disease
- Lupus or SLE
- Periodontal Disease
- Periodontitis
- Systemic Lupus Erythematosus (SLE)
- Tuberous Sclerosis Complex (TSC)
Eligibility Criteria
- Sex
- ALL
- Age
- 18 Years - N/A
- Healthy Volunteers
- Not accepted
Interventions
- Observational assessment — OTHERNon-interventional observational assessment including periodontal examination and clinical data collection.
Study Details
This study aims to evaluate the burden and phenotypic spectrum of periodontal disease in patients with rare kidney disorders (such as Alport syndrome, Fabry disease, and tuberous sclerosis complex) and systemic lupus erythematosus (SLE), compared with chronic kidney disease (CKD) controls and population controls. This is a cross-sectional, case-control observational study. Participants will undergo a single structured evaluation including a full-mouth periodontal examination, a clinical questionnaire, and collection of relevant clinical and nephrological data. The primary objective is to compare the prevalence of periodontitis across study groups. Secondary objectives include characterization of periodontal disease severity, prevalence of gingivitis and xerostomia, and identification of disease-specific oral phenotypes. Exploratory analyses will assess associations between periodontal disease and clinical variables such as kidney function, proteinuria, and immunosuppressive exposure.
Key Dates
- Start date
- May 4, 2026
- Status verified
- May 2026
- Primary completion
- Dec 31, 2027
- Completion
- Dec 31, 2027
Study Design
- Enrollment
- 100 participants (estimated)
Arms
- Arm: Alport SyndromePatients with Alport syndrome confirmed by genetic testing or kidney biopsy
- Arm: Fabry DiseasePatients with enzymatic or genetically confirmed Fabry disease
- Arm: Tuberous Sclerosis ComplexPatients diagnosed with Tuberous Sclerosis Complex according to established clinical or genetic criteria
- Arm: Systemic Lupus ErythematosusSystemic lupus erythematosus defined according to EULAR/ACR 2019 classification criteria, with renal involvement defined by at least one of the following: * Biopsy-proven lupus nephritis * Persistent proteinuria (\>0.5 g/day or equivalent) * Active urinary sediment (hematuria and/or cellular casts) consistent with lupus nephritis
- Arm: CKD ControlsPatients with chronic kidney disease of non-rare etiology
- Arm: Population ControlsIndividuals without known chronic kidney disease
Primary Outcome Measure
Prevalence of Periodontitis [ Time Frame: At the single study visit (baseline) ]
Central Contacts
- Stefan N Lujinschi, MD, PhD candidate+40728102643
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