ACT-GEN (Adherence And Care Tracking In GENetic Cancer Syndromes)

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Standard of care — OTHER
Standard of Care, no efforts will be made toward any of the study objectives
Interviews — OTHER
Up to three interviews may be conducted per participant, and they may take place remotely via a secure videoconferencing service to limit disruptions to the participants schedule as well as any financial burden associated with travel.

To help people with high-risk cancer variants to follow cancer surveillance guidelines and lower their risk of developing the disease.

Experimental: Part 1: Design and development
This part of the study is a qualitative study that will include Qualitative Interviews with participants to help design a patient-centered digital application.
Experimental: Part 2: Feasibility study with two-arm randomization
Patients will be randomized in a 1:1 ratio through REDCap to one of the two study arms described below.

Safety and adverse events (AEs). [ Time Frame: Through study completion; an average of 1 year ]

Facility	City	State	ZIP	Site coordinators
MD Anderson Cancer Center	Houston	Texas	77030	Jose Rauh-Hain, MD [email protected] 713-794-1759 Jose Rauh-Hain, MD (PRINCIPAL_INVESTIGATOR)

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