Psychological Burden of Thyroid Eye Disease

Conditions

• Thyroid Eye Disease, TED

Eligibility Criteria

Sex

ALL

Age

18 Years - N/A

Healthy Volunteers

Not accepted

Interventions

• focus groups and individual interviews as well as filling out questionnaires — OTHER
  focus groups and individual interviews as well as filling out questionnaires

Study Details

This interview study aims to look in depth at the quality of life of people living with TED and their caregivers, with emphasis on impact on mood, relationships, work/education, and leisure. The investigators plan to examine this through a two-part focus group followed by individual interviews. Participants will also complete self-report measures.

Key Dates

Start date

Jan 1, 2025

Status verified

Feb 2026

Primary completion

Dec 31, 2025

Completion

Dec 31, 2025

Study Design

Enrollment

20 participants (actual)

Arms

• Arm: patients living with TED and their loved ones
  interviews, focus groups \& completion of questionnaires by patients living w TED and their loved ones

Primary Outcome Measure

Understand the experience of people living with TED and of caregivers of people living with TED. The investigators aim to define the different facets of TED-specific psychological burden. [ Time Frame: 3 months ]

Locations (1)

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