A Culturally Adapted Decision Aid Intervention to Support Chinese American Dementia Caregivers in Feeding-Related Decisions

Conditions

• Advanced Dementia
• Dementia Caregivers
• End of Life Decision Making

Eligibility Criteria

Sex

ALL

Age

21 Years - 99 Years

Healthy Volunteers

Not accepted

Interventions

• Chinese version of Making Choices Feeding Options for Patients with Dementia Decision Aid — OTHER
  Participants in the treatment group will receive the CMCFODA via zoom meeting or another secure video conferencing platform and an individualized decision coaching.

Study Details

Family caregivers of people with dementia have to decide between tube feeding and hand feeding when persistent eating problems arise. This decision can be difficult for Chinese American dementia caregivers, due to the interplay of culture, potential absence of a patient's advance directive, poor understanding of dementia, and lack of knowledge on the risks and benefits of tube feeding. In this polit study, the principal investigator examines whether a culturally adapted decision aid intervention regarding feeding options named "Chinese version of Making Choices Feeding Options for Patients with Dementia Decision Aid" (CMCFODA) will improve Chinese American caregivers' decision-making about feeding options in patients with moderate or advanced dementia. The proposed study advances the field by providing critical evidence to inform the development and implementation of culturally adapted decision support interventions in end-of-life dementia care.

Key Dates

Start date

Mar 24, 2026

Status verified

Jan 2026

Primary completion

Jun 30, 2027

Completion

Jul 31, 2028

Study Design

Enrollment

60 participants (estimated)

Allocation

RANDOMIZED

Intervention model

PARALLEL

Primary purpose

SUPPORTIVE_CARE

Arms

• No Intervention: Participation Group
  1. Receive usual care (including information from healthcare providers) 2. Receive electrical version of decision aid after all of the data collection
• Experimental: Intervention/Treatment Group
  1. Receive both the electronic and paper version of CMCFODA 2. Receive an individualized decision coaching within two weeks

Primary Outcome Measure

Decision conflict [ Time Frame: Baseline; One-Month Follow-Up; Three-Month Follow-Up ]

Central Contacts

• Yaolin Pei, Ph.D.
  8064708689
  [email protected]

Locations (1)

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