Personalized Antisense Oligonucleotide for A Single Participant With GARS1 Gene Mutation Associated With Charcot-Marie-Tooth Disease Type 2D (CMT2D)

Part of paid clinical trials in Houston, Texas.

Sponsor
n-Lorem Foundation
Study ID
NCT07226297
Phase
PHASE1/PHASE2
Status
Enrolling By Invitation

Conditions

  • Charcot-Marie-Tooth Disease Type 2D

Eligibility Criteria

Sex
FEMALE
Age
13 Years - N/A
Healthy Volunteers
Not accepted

Interventions

  • nL-GARS1-001 — DRUG
    Personalized antisense oligonucleotide

Study Details

This research project entails delivery of a personalized antisense oligonucleotide (ASO) drug designed for a single participant with Charcot-Marie-Tooth disease type 2D (CMT2D) due to a pathogenic, de novo deletion mutation in GARS1

Key Dates

Start date
Oct 27, 2025
Status verified
Oct 2025
Primary completion
Oct 31, 2027
Completion
Oct 31, 2027

Study Design

Enrollment
1 participants (estimated)
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
TREATMENT

Arms

  • Experimental: Open Label

Primary Outcome Measure

Motor Skills [ Time Frame: Baseline to 24 months ]

Locations (1)

FacilityCityStateZIPSite coordinators
UTHealth HoustonHoustonTexas77030-

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