Beliefs, Attitudes, and Response to Genetic Testing in SarcomaPatients

Part of paid clinical trials in Salt Lake City, Utah.

Sponsor
University of Utah
Study ID
NCT06875700
Status
Recruiting
Apply to this trial

Conditions

  • Leiomyosarcoma

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Accepted

Study Details

Genomic research has shown that a portion of leiomyosarcomas can be attributed to an underlying cancer predisposition syndrome. However, the optimal approach for incorporating germline testing into the care of these patients. This study is assessing the beliefs about the heritability of leiomyosarcoma and other cancer risks, and attitudes towards germline testing among leiomyosarcoma patients.

Key Dates

Start date
Jul 9, 2024
Status verified
Jun 2025
Primary completion
Aug 31, 2027
Completion
Aug 31, 2027

Study Design

Enrollment
300 participants (estimated)

Arms

  • Arm: LMS Probands
    LMS Probands are the first person in a family to be known to have a germline predisposition gene mutation in LMS. A cohort of patients with a histologically confirmed leiomyosarcoma diagnosis will be prospectively recruited from two SPORE prospective biomarker studies.
  • Arm: Relative of LMS Probands
    Relatives to LMS probands will be enrolled in this cohort. Approximately 4 family members per proband will be recruited.

Primary Outcome Measure

Beliefs about the heritability of Leiomyosarcoma [ Time Frame: up to 1 day from study enrollment ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Huntsman Cancer Institute at the University of UtahSalt Lake CityUtah84112
Wendy K Kohlmann, MS
[email protected]
801-587-5556
Wendy K Kohlmann, MS (PRINCIPAL_INVESTIGATOR)

Find similar trials in Salt Lake City, UT

By research site
Huntsman Cancer Institute at the University of Utah· Salt Lake City, UT

Related Studies