SCI&U Peer Health Coaching Program for Individuals Newly Discharged From Inpatient Rehabilitation

Part of paid clinical trials in Milford, Connecticut.

Sponsor
University of Toronto
Study ID
NCT06677905
Status
Recruiting
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Conditions

  • Spinal Cord Injury

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Not accepted

Interventions

  • web-based spinal cord injury self-management program — BEHAVIORAL
    Peer health coaches will be recruited from the United Spinal Connecticut Chapter and SCI BC. They will be at least 5 years post-SCI and will be certified in brief action planning and in Mental Health First Aid. Online coaching sessions are expected to cover a health-related topic (eg. bladder, bowel, skin, pain, healthy eating, physical activity or stress, anxiety and depression etc) and a self-management skill topic (eg.action planning, goal setting, problem-solving, mood management, navigating the health care system, communicating with health care providers). To ensure we meet the unique needs of participants, the coach and participant will determine jointly how many sessions to spend on a topic. In addition, coaches will be able to link relevant information and resources contained in the resource library to each session.
  • Peer support — BEHAVIORAL
    Existing peer support program from the United Spinal Connecticut Chapter or SCI BC

Study Details

The goal of this clinical trial is to learn if the online program and web-based platform for delivery of self-management services to people with spinal cord injury (SCI) called "SCI \& U" can support transitions from hospital to the community after injury. Specifically, can providing support from trained peer health coaches via the SCI \& U web-based self-management program increase health self-management among those within three years of a spinal cord injury with a planned discharge to or living in the community with SCI for less than two years in the province of British Columbia, Canada or the state of Connecticut, United States. The main question it aims to answer is: • Does the SCI \& U web-based self-management program lower emotional distress and increase self-efficacy Researchers will compare those who participate in SCI \& U with those who receive usual peer support after 6 months to see if the SCI \& U program improves self-management knowledge, skills and self-efficacy and decreases secondary complications Participants will: * engage in up to 14 online sessions, each of which lasts about an hour with a peer health coach trained in motivational interviewing, goal setting and brief action planning. During sessions, they may also review resources and create follow up plans on the online platform on health management topics * complete an interviewer administered survey at baseline, 6 and 12 months

Key Dates

Start date
Feb 21, 2025
Status verified
Aug 2025
Primary completion
Jun 30, 2026
Completion
Dec 31, 2026

Study Design

Enrollment
76 participants (estimated)
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
SUPPORTIVE_CARE

Arms

  • Experimental: SCI&U self-management program
    Following recruitment intervention participants will be scheduled for an orientation session to become better acquainted with the health coaching program and the associated platform's features. Participants will then be partnered with their peer health coach. In the first videoconference session, participants will identify priority issues related to their health and transitioning to home. They will work through goal-setting, problem solving and create action plans for behaviour change. Online coaching sessions are expected to cover a health-related topic and a self-management skill topic and will have an expected duration of 45 to 60 minutes. The selection of topics and the order will be determined jointly.
  • Active Comparator: Wait list control
    Control group will be offered the existing peer support program from the United Spinal Connecticut Chapter or SCI BC

Primary Outcome Measure

Emotional Distress Subscale in Health Education Impact Questionnaire [ Time Frame: From baseline assessment to 6 months followup ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Spinal Cord Injury Association of ConnecticutMilfordConnecticut06460
Diana Pernigotti
[email protected]
203-284-2910

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By research site
Spinal Cord Injury Association of Connecticut· Milford, CT

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