Longitudinal Endpoint Assessment of Disease Burden in HD

Part of paid clinical trials in Rochester, New York.

Sponsor
Huntington Study Group
Study ID
NCT06475898
Status
Recruiting

Conditions

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Not accepted

Study Details

LEAD-HD is intended to collect and analyze self-reported health information from individuals with Huntington Disease (HD) or prodromal HD participating in a 24-month longitudinal natural history study using remote technologies.

Key Dates

Start date
Jun 25, 2024
Status verified
Sep 2025
Primary completion
Dec 31, 2026
Completion
Dec 31, 2026

Study Design

Enrollment
600 participants (estimated)

Primary Outcome Measure

PRO natural history [ Time Frame: December 2026 ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Huntington Study GroupRochesterNew York14618
Lauren Falanga
800-487-7671

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