Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry)

Part of paid clinical trials in Chicago, Illinois.

Sponsor
Foundation for Sarcoidosis Research
Study ID
NCT06234384
Status
Recruiting
Apply to this trial

Conditions

  • Sarcoidosis

Eligibility Criteria

Sex
ALL
Age
7 Years - N/A
Healthy Volunteers
Accepted

Interventions

  • Sarcoidosis diagnosis — OTHER
    Participants have been diagnosed with sarcoidosis.

Study Details

The goal of the study is to create a longitudinal record of patient reported outcomes for people living with sarcoidosis that maintains privacy. Patients report on the following: demographics, disease symptoms, diagnostic journey, provider experience, disease treatment, and burden of disease. Patients can also link their Electronic Health Records (EHR). The goal is to create a natural history of sarcoidosis, support research, and better understand the needs of the sarcoidosis community.

Key Dates

Start date
Jul 31, 2013
Status verified
Sep 2025
Primary completion
Jun 30, 2033
Completion
Jul 31, 2033

Study Design

Enrollment
6,833 participants (estimated)

Primary Outcome Measure

Completed participation in baseline survey [ Time Frame: If a survey question is completely blank, a query can be sent to request the subject to complete the section. Subjects will be contacted only twice to attempt to resolve an issue. The timeframe from time to event outcome shall not exceed 6 months. ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Foundation For Sarcoidosis ResearchChicagoIllinois60654
Tricha Shivas, MBe
[email protected]
312-241-0400
Rebecca A Epstein, MPH
[email protected]
312-340-0500

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Foundation For Sarcoidosis Research· Chicago, IL

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