Data Collection Protocol for Patients With Von Hippel Lindau Disease

Part of paid clinical trials in Houston, Texas.

Sponsor: M.D. Anderson Cancer Center
Study ID: NCT05955014
Status: Recruiting

Conditions

Von Hippel Lindau Disease

Eligibility Criteria

Sex: ALL
Age: 18 Years - N/A
Healthy Volunteers: Not accepted

Study Details

To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.

Key Dates

Start date: Aug 24, 2023
Status verified: Nov 2025
Primary completion: Dec 31, 2026
Completion: Dec 31, 2026

Study Design

Enrollment: 125 participants (estimated)

Primary Outcome Measure

Progression-free survival (PFS) [ Time Frame: through study completion; an average of 1 year ]

Central Contacts

Eric Jonasch, MD
(713) 563-7232
[email protected]

Locations (1)

Facility	City	State	ZIP	Site coordinators
M D Anderson Cancer Center	Houston	Texas	77030	Eric Jonasch, MD [email protected] 713-563-7232 Eric Jonasch, MD (PRINCIPAL_INVESTIGATOR)

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By research site

M D Anderson Cancer Center· Houston, TX

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