Barriers and Facilitators of Parent-Child Communication in Children With Cancer Predisposition

Part of paid clinical trials in Memphis, Tennessee.

Sponsor
St. Jude Children's Research Hospital
Study ID
NCT05849155
Status
Recruiting
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Conditions

  • Genetic Predisposition

Eligibility Criteria

Sex
ALL
Age
10 Years - 24 Years
Healthy Volunteers
Not accepted

Study Details

Testing children, adolescents, and young adults (CAYA) for a genetic risk for cancer can help with early prevention and detection of cancers through regular follow-ups and medical care. After receiving genetic test results, CAYA may not accurately understand what their results mean, and parents are often unsure about talking with their CAYA about their genetic risk for cancer. By understanding how parents communicate with their CAYA, the investigators can improve future genetic education to reduce cancer risk. Primary Objectives: * Identify qualities of parent-CAYA (child, adolescent, and young adults) communication about CAYAs' genomic cancer risk, and their association with CAYAs' psychosocial and prevention outcomes. * Examine the association between sociodemographic, cancer-related, and psychosocial factors and parent-CAYA communication regarding CAYAs' genomic risk for cancer. * Identify barriers and facilitators of parent-CAYA communication regarding CAYAs' genomic risk for cancer.

Key Dates

Start date
Dec 12, 2023
Status verified
Apr 2026
Primary completion
Oct 31, 2027
Completion
Oct 31, 2028

Study Design

Enrollment
125 participants (estimated)

Primary Outcome Measure

Behavior Observations [ Time Frame: Day 0 ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
St. Jude Children's Research HospitalMemphisTennessee38105
[email protected]
888-226-4343

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By research site
St. Jude Children's Research Hospital· Memphis, TN

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