Chronic Thromboembolic Disease Registry

Part of paid clinical trials in San Francisco, California.

Sponsor
University of California, San Francisco
Study ID
NCT05843500
Status
Recruiting
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Conditions

  • Chronic Thromboembolic Disease
  • Chronic Thromboembolic Pulmonary Hypertension

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Not accepted

Interventions

  • Survey — OTHER
    Patients who received medical, surgical or interventional treatment for chronic thromboembolic pulmonary hypertension will be followed and given quality of life questionnaires.

Study Details

The goal of this patient registry is to learn about the natural history in patients with chronic thromboembolic disease (CTD) and/or chronic thromboembolic pulmonary hypertension (CTEPH). The main question\[s\] it aims to answer are: * Long-term outcome after various types of treatment, including medication, balloon pulmonary angioplasty, and pulmonary endarterectomy * Effect of treatment on patient's quality of life and exercise tolerance Participants will be followed longitudinally to assess their health outcomes and quality of life via chart review and health quality surveys.

Key Dates

Start date
Aug 1, 2023
Status verified
Jun 2025
Primary completion
Jul 1, 2028
Completion
Jul 1, 2028

Study Design

Enrollment
100 participants (estimated)

Arms

  • Arm: Chronic thromboembolic disease
    Patients with chronic thromboembolic disease/pulmonary hypertension

Primary Outcome Measure

Total number of patients who survive [ Time Frame: Through study completion, an average of 5 years ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
University of California San FranciscoSan FranciscoCalifornia94143
Miles Conrad, MD
[email protected]
415-353-1300
Xiao Wu, MD
[email protected]
628-286-7340
Miles Conrad, MD (PRINCIPAL_INVESTIGATOR)

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