Registry for CADASIL

Conditions

• Cerebral Autosomal Dominant Ateriopathy With Subcortical Infarcts and Leukoencephalopathy

Eligibility Criteria

Sex

ALL

Age

18 Years - 90 Years

Healthy Volunteers

Accepted

Interventions

• Registry — OTHER
  Registry

Study Details

This study is being done in order to create a registry (list) of people interested in Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy (CADASIL) research. It may be that you have a family member or other loved one with CADASIL, or that you may have CADASIL or are at risk. Participation means that your name will be added to a list of people who will be invited to participate in future research studies on CADASIL. Participants must be 18 years or older, and will remain on the registry until they request to be removed.

Key Dates

Start date

Jun 3, 2022

Status verified

Oct 2025

Primary completion

Oct 31, 2027

Completion

Oct 31, 2027

Study Design

Enrollment

2,500 participants (estimated)

Arms

• Arm: CADASIL Registry Participants
  Have a loved one or family member with CADASIL, or anyone with or at risk for CADASIL

Primary Outcome Measure

A Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy (CADASIL) Registry [ Time Frame: Up to 20 years ]

Central Contacts

• CADASIL Consortium
  833-795-3016
  [email protected]

Locations (1)

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