The Severe Von Willebrand Disease (sVWD) Patient Registry

Conditions

• VWD - Von Willebrand's Disease

Eligibility Criteria

Sex

ALL

Age

N/A - N/A

Healthy Volunteers

Not accepted

Study Details

A web-based registry will be created by the sponsor, VWD Connect Foundation (VCF), to collect data on patients with severe Von Willebrand Disease (sVWD). Data will be self-reported by patients and/or collected by registry personnel, as appropriate. The purpose of the sVWD Patient Registry is to create a database of well-characterized (with respect to demographics, medical history, symptoms, laboratory and genetic data, etc.) patients with sVWD for participation in retrospective and prospective research.

Key Dates

Start date

Dec 10, 2021

Status verified

Apr 2026

Primary completion

Dec 31, 2031

Completion

Dec 31, 2031

Study Design

Enrollment

400 participants (estimated)

Primary Outcome Measure

Outcomes are not applicable; this study is a patient registry. [ Time Frame: At least 5 years ]

Central Contacts

• Christina Morgenthaler, MS, MBA
  (279) 346-6202
  [email protected]

Locations (1)

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