CureDuchenne Link®: A Resource for Research

Part of paid clinical trials in Little Rock, Arkansas.

Sponsor
CureDuchenne
Study ID
NCT04972604
Status
Recruiting
Apply to this trial

Conditions

Eligibility Criteria

Sex
ALL
Age
4 Weeks - N/A
Healthy Volunteers
Not accepted

Study Details

CureDuchenne link is a data hub comprised of integrated biospecimens, clinical data, and self- and/or caregiver-reported information from participants. Anyone over 4 weeks old who has been diagnosed with DMD or BMD or who is a carrier of DMD or BMD can join. Parents or legal guardians can sign up their child(ren).

Key Dates

Start date
Jul 9, 2021
Status verified
Aug 2024
Primary completion
Jul 9, 2031
Completion
Jul 9, 2031

Study Design

Enrollment
5,000 participants (estimated)

Arms

  • Arm: Duchenne and Becker muscular dystrophy
    Individuals with Duchenne muscular dystrophy and Becker muscular dystrophy
  • Arm: Carriers
    Carriers of Duchenne muscular dystrophy and Becker muscular dystrophy

Primary Outcome Measure

Diagnosis [ Time Frame: Upon study entry ]

Central Contacts

Locations (10)

FacilityCityStateZIPSite coordinators
Arkansas Children's HospitalLittle RockArkansas72202
Aravindhan Veerapandiyan, MD
[email protected]
501-364-7373
CureDuchenneNewport BeachCalifornia92660
CD Link Staff
[email protected]
888-235-4655
Debra Miller (PRINCIPAL_INVESTIGATOR)
Children's Hospital of Orange CountyOrangeCalifornia92868
Linda Do
[email protected]
714-509-8945
Amanda Fernandez, MD (PRINCIPAL_INVESTIGATOR)
Rare Disease ResearchAtlantaGeorgia30329
Han Phan, MD (PRINCIPAL_INVESTIGATOR)
University of IowaIowa CityIowa52242
Katherine Matthews
[email protected]
Kansas University Clinical Research CenterFairwayKansas66205
Cassidy Nelson
[email protected]
Jeffrey Statland, MD (PRINCIPAL_INVESTIGATOR)
Corewell HealthGrand RapidsMichigan49503
Abby Setterington
[email protected]
Jena Krueger, MD (PRINCIPAL_INVESTIGATOR)
Rare Disease Research CenterHillsboroughNorth Carolina27278
Annette Babu
[email protected]
Edward Smith (PRINCIPAL_INVESTIGATOR)
Penn State HealthHersheyPennsylvania17033
Ellen Stoute
[email protected]
Ashutosh Kumar, MD (PRINCIPAL_INVESTIGATOR)
Neurology Rare Disease CenterDentonTexas76208
Guillermo Saldaña
[email protected]
Diana Castro, MD (PRINCIPAL_INVESTIGATOR)

Find similar trials in Little Rock, AR

By condition
Duchenne muscular dystrophy
By specialty
Pediatrics
By research site
Arkansas Children's Hospital· Little Rock, ARCureDuchenne· Newport Beach, CAChildren's Hospital of Orange County· Orange, CARare Disease Research· Atlanta, GAUniversity of Iowa· Iowa City, IAKansas University Clinical Research Center· Fairway, KS

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