Child and Adolescent Registry for Participants With Narcolepsy

Part of paid clinical trials in Phoenix, Arizona.

Sponsor
Jazz Pharmaceuticals
Study ID
NCT04899947
Status
Recruiting
Apply to this trial

Conditions

Eligibility Criteria

Sex
ALL
Age
N/A - 17 Years
Healthy Volunteers
Not accepted

Study Details

CATNAP is a patient registry designed to improve the understanding of the natural history of narcolepsy in pediatric patients. Descriptive statistics on disease characteristics will be performed. The study has 16 active clinical sites and a virtual site that widens participation to anywhere in the United States. For more information about the study or to access the Online Patient Enrollment System, visit the CATNAP website: https://catnap.healthie.net/welcome or email [email protected]. The Online Patient Enrollment System, CATNAP website, can also be found in the references section.

Key Dates

Start date
Oct 10, 2020
Status verified
Aug 2024
Primary completion
Oct 1, 2024
Completion
Oct 1, 2024

Study Design

Enrollment
500 participants (estimated)

Primary Outcome Measure

Improve Understanding of Natural History of Pediatric Narcolepsy [ Time Frame: Up to 4 years ]

Central Contacts

Locations (25)

FacilityCityStateZIPSite coordinators
Phoenix Children's HospitalPhoenixArizona85016-
University of ArizonaTucsonArizona85719-
University of ArkansasFayettevilleArkansas72701-
Arkansas Children's Research InstituteLittle RockArkansas72202-
Stanford UniversityRedwood CityCalifornia94063-
University of California San DiegoSan DiegoCalifornia92093-
Children's National Medical CenterWashington D.C.District of Columbia20010-
Children's Research InstituteWashington D.C.District of Columbia20010-
University of South FloridaTampaFlorida33620-
Lurie Children's Hospital of ChicagoChicagoIllinois60611-
Johns Hopkins UniversityBaltimoreMaryland21205-
Boston Children's HospitalBostonMassachusetts02115-
Trinity Health-MichiganGrand RapidsMichigan49503-
Mayo ClinicRochesterMichigan55905-
St. Luke's HospitalChesterfieldMissouri63017-
Children's Mercy HospitalKansas CityMissouri64108-
Northwell HealthManhassetNew York11030-
Cincinnati Children's Hospital Medical CenterCincinnatiOhio45229-
University Hospitals Cleveland Medical Centre (UHCMC)ClevelandOhio44106-
Nationwide Children's HospitalColumbusOhio43205-
Ohio Sleep Medicine InstituteDublinOhio43017-
GeisingerDanvillePennsylvania17822-
Children's Hospital of PhiladelphiaPhiladelphiaPennsylvania19104-
Texas Children's Hospital (Baylor College of Medicine)HoustonTexas77030-
Children's Hospital of the King's DaughtersNorfolkVirginia23507-

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By research site
Phoenix Children's Hospital· Phoenix, AZUniversity of Arizona· Tucson, AZUniversity of Arkansas· Fayetteville, ARArkansas Children's Research Institute· Little Rock, ARStanford University· Redwood City, CAUniversity of California San Diego· San Diego, CA

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