University of Virginia Natural History Study

Part of paid clinical trials in Charlottesville, Virginia.

Sponsor
University of Virginia
Study ID
NCT04896138
Status
Enrolling By Invitation

Conditions

  • Connective Tissue Diseases
  • Hypersensitivity Pneumonitis
  • Idiopathic Interstitial Pneumonias
  • Idiopathic Pulmonary Fibrosis
  • Interstitial Lung Disease
  • Sarcoidosis

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Accepted

Interventions

  • Interstitial Lung Disease — OTHER
    Not applicable - this is not an interventional trial

Study Details

Data and specimens will be collected longitudinally from patients seen in the UVA Interstitial Lung Disease (ILD) clinic in order to describe the phenotypic expression of various interstitial lung diseases. Samples will also be collected from a control group for comparison purposes. All data will be entered into a repository for future research purposes or screening for new studies that become available. This data will help identify trends and hopefully lead to a better understanding of the disease progression, treatment options, and outcomes.

Key Dates

Start date
Aug 28, 2018
Status verified
May 2024
Primary completion
Aug 31, 2035
Completion
Aug 31, 2035

Study Design

Enrollment
2,500 participants (estimated)

Arms

  • Arm: ILD Cohort
    Patients with Interstitial Lung Disease seen at the UVA ILD or Pulmonary Clinic
  • Arm: Control Cohort
    Control group of patients and family members of those with an Interstitial Lung Disease

Primary Outcome Measure

Clinical Course of Disease [ Time Frame: Yearly from date of consent until subject is lost to follow-up or death occurs, whichever comes first, assessed up to 144 months ]

Locations (1)

FacilityCityStateZIPSite coordinators
University of Virginia Health SystemCharlottesvilleVirginia22908-

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