International Registry of Patients With Alpha Thalassemia

Part of paid clinical trials in San Francisco, California.

Sponsor
University of California, San Francisco
Study ID
NCT04872179
Status
Recruiting
Apply to this trial

Conditions

  • Alpha Thalassemia Major
  • Alpha Thalassemia Minor
  • Alpha-Thalassemia

Eligibility Criteria

Sex
ALL
Age
N/A - N/A
Healthy Volunteers
Not accepted

Study Details

This is an international prospective registry of patients with Alpha thalassemia to understand the natural history of the disease and the outcomes of fetal therapies, with the overall goal of improving the prenatal management of patients with Alpha thalassemia.

Key Dates

Start date
Jan 31, 2017
Status verified
Apr 2025
Primary completion
Jan 31, 2027
Completion
Jan 31, 2037

Study Design

Enrollment
500 participants (estimated)

Primary Outcome Measure

Survival to birth [ Time Frame: 6 months ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
University of California San FranciscoSan FranciscoCalifornia94143
Tippi C MacKenzie, MD (PRINCIPAL_INVESTIGATOR)

Find similar trials in San Francisco, CA

By research site
University of California San Francisco· San Francisco, CA

Related Studies