ETMR One: An International Registry and Research Platform for Children With Embryonal Tumor With Multilayer Rosettes

Part of paid clinical trials in Hackensack, New Jersey.

Sponsor
Hackensack Meridian Health
Study ID
NCT04794686
Status
Recruiting
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Conditions

  • Embryonal Tumor With Multilayered Rosettes

Eligibility Criteria

Sex
ALL
Age
N/A - N/A
Healthy Volunteers
Not accepted

Study Details

This research is being done to find out more information about a brain tumor called Embryonal Tumor with Multilayer Rosettes (ETMR) by collecting medical information from children who have this disease. The purpose of this research study is to create and maintain a research database for patients with ETMR. The database will include information about occurrence rates, patient information, tumor tissue information, and response to treatment. This will help advance our understanding of this rare disease. In addition, this study will include obtaining survival data and evaluating therapeutic response to expert consensus therapy, and procuring patient tumor tissue.

Key Dates

Start date
Jul 12, 2020
Status verified
May 2026
Primary completion
Jul 12, 2030
Completion
Jul 12, 2030

Study Design

Enrollment
100 participants (estimated)

Primary Outcome Measure

ETMR One Registry [ Time Frame: 10 years ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Hackensack University Medical CenterHackensackNew Jersey07601
Elana Smilow Smilow, MSN
[email protected]
551-996-5673
Kellie Daniel, BA
[email protected]
551-996-3654

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