Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Part of paid clinical trials in New York, New York.

Sponsor
Memorial Sloan Kettering Cancer Center
Study ID
NCT04690374
Status
Recruiting
Apply to this trial

Conditions

  • Desmoplastic Small Round Cell Tumor

Eligibility Criteria

Sex
ALL
Age
N/A - N/A
Healthy Volunteers
Not accepted

Study Details

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Key Dates

Start date
Dec 22, 2020
Status verified
Jan 2026
Primary completion
Dec 31, 2027
Completion
Dec 31, 2027

Study Design

Enrollment
250 participants (estimated)

Arms

  • Arm: Desmoplastic small round cell tumor (DSRCT)
    Collect historical/longitudinal clinical, radiographic and molecular features of DSRCT patients as documented in medical records to improve knowledge about DSRCT

Primary Outcome Measure

Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor [ Time Frame: 7 years ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Memorial Sloan Kettering Cancer Center (All Protocol Activities)New YorkNew York10065
Emily Slotkin, MD
833-675-5437
Shakeel Modak, MD
1-833-675-5437
Emily Slotkin, MD (PRINCIPAL_INVESTIGATOR)

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By research site
Memorial Sloan Kettering Cancer Center (All Protocol Activities)· New York, NY

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