Autosomal Dominant Polycystic Kidney Disease (ADPKD) Study

Conditions

• ADPKD

Eligibility Criteria

Sex

ALL

Age

N/A - 18 Years

Healthy Volunteers

Not accepted

Study Details

Autosomal Dominant Polycystic Kidney Disease (ADPKD) is the most common genetic cause of renal failure. For several decades, ADPKD was regarded as an adult-onset disease. In the last decade, it has become more widely appreciated that the disease course begins in childhood. However, evidence-based guidelines on how to manage and approach children diagnosed with or at-risk for of ADPKD are lacking. Overall, there is insufficient data on the clinical course during childhood. The study intends to get more information on Autosomal Dominant Polycystic Kidney Disease (ADPKD) and other hepato/renal fibrocystic diseases. Additionally, the study intends to expand web-based resources so anyone can learn about ADPKD or other hepato/renal fibrocystic diseases. Individuals diagnosed with the dominant form of a hepato/renal fibrocystic condition are invited to be in the study.

Key Dates

Start date

Oct 10, 2019

Status verified

Jun 2025

Primary completion

Oct 30, 2030

Completion

Oct 30, 2030

Study Design

Enrollment

300 participants (estimated)

Primary Outcome Measure

Database registry [ Time Frame: up to 10 years ]

Central Contacts

• Jasmine Jaber, MS
  267-425-5325
  [email protected]

Locations (4)

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