Amyotrophic Lateral Sclerosis (ALS) Families Project

Part of paid clinical trials in New York, New York.

Sponsor
Columbia University
Study ID
NCT03865420
Status
Recruiting
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Conditions

Eligibility Criteria

Sex
ALL
Age
18 Years - 105 Years
Healthy Volunteers
Not accepted

Study Details

This program provides family members of individuals with familial ALS the opportunity to contribute to research focused on learning more about why motor neuron degeneration begins and how or why it progresses. This study provides genetic counseling and testing to help participants understand and manage their risk and determine if they want to learn their genetic status. This study will follow unaffected ALS gene mutation carriers on an annual basis to gather essential information that will ultimately help researchers develop novel therapies for the prevention and treatment of ALS.

Key Dates

Start date
Sep 11, 2018
Status verified
Jan 2026
Primary completion
Jan 31, 2027
Completion
Jan 31, 2027

Study Design

Enrollment
300 participants (estimated)

Primary Outcome Measure

Time to emergence of symptoms attributable to gene mutations [ Time Frame: Up to 10 years ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Columbia UniversityNew YorkNew York10032
Elizabeth Harrington, MS, CGC
[email protected]
347-852-5315

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By research site
Columbia University· New York, NY

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