Dissemination of the Donor Application: Utilizing Social Media to Identify Potential Live Organ Donors

Part of paid clinical trials in San Diego, California.

Sponsor
Johns Hopkins University
Study ID
NCT03803423
Status
Recruiting
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Conditions

  • End Stage Liver Disease
  • End Stage Renal Disease

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Accepted

Interventions

  • The Donor App — OTHER
    The Donor app is a web-based application that helps transplant candidates tell the candidate's story via social media in the hopes of identifying an appropriate living donor. Sample stories created using the Donor App can be found at www.thedonorapp.com.

Study Details

This study utilizes a web-based application to help patients on the organ transplant waitlist communicate patient's need for a living donor via social media and provide interested potential donors the opportunity to engage with the evaluation process.

Key Dates

Start date
Nov 27, 2017
Status verified
Nov 2025
Primary completion
Nov 27, 2026
Completion
Nov 27, 2026

Study Design

Enrollment
1,000 participants (estimated)
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
OTHER

Arms

  • Experimental: The Donor App
    Select physicians and research staff from about 15 transplant hospitals will be given access to distribute the application to patients who the above people feel could benefit from the application. After obtaining informed consent, an approved member of the study team will enter the participant's name, contact info, and organ needed into the Donor App's secure management portal to send an email or text message with a unique and protected invitation link to the participant. Using this link the participant will be allowed to use the Donor App indefinitely.

Primary Outcome Measure

Potential donors identified [ Time Frame: Up to 5 years ]

Central Contacts

Locations (6)

FacilityCityStateZIPSite coordinators
Scripps Green HospitalSan DiegoCalifornia92037-
Yale UniversityNew HavenConnecticut06520-
Rush University Medical CenterChicagoIllinois60612
Sherri Loeb, BSN
Maine Medical CenterPortlandMaine04102-
The Johns Hopkins HospitalBaltimoreMaryland21218
Andrew Cameron, MD PhD
[email protected]
443-287-0134
Andrew Cameron, MD PhD (PRINCIPAL_INVESTIGATOR)
Washington University in St. LouisSt LouisMissouri63110-

Find similar trials in San Diego, CA

By research site
Scripps Green Hospital· San Diego, CAYale University· New Haven, CTRush University Medical Center· Chicago, ILMaine Medical Center· Portland, METhe Johns Hopkins Hospital· Baltimore, MDWashington University in St. Louis· St Louis, MO

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