Natural History of Wilson Disease

Part of paid clinical trials in New Haven, Connecticut.

Sponsor
Yale University
Study ID
NCT03334292
Status
Recruiting
Apply to this trial

Conditions

  • Wilson Disease

Eligibility Criteria

Sex
ALL
Age
N/A - N/A
Healthy Volunteers
Not accepted

Study Details

The purpose of the registry/repository is to provide a mechanism to store data and specimens to support the conduct of future research about Wilson disease (WD). The overall aim is to determine the optimal testing for diagnosis and parameters for monitoring treatment of WD that will aid product utilization and development.

Key Dates

Start date
Dec 18, 2017
Status verified
May 2025
Primary completion
Nov 15, 2029
Completion
Nov 15, 2029

Study Design

Enrollment
300 participants (estimated)

Primary Outcome Measure

Create registry for Wilson disease [ Time Frame: 5 Years ]

Central Contacts

Locations (4)

FacilityCityStateZIPSite coordinators
Yale UniversityNew HavenConnecticut06520
Sefa Keserci, PhD
[email protected]
203-376-6043
Asim Ulcay
[email protected]
Michael Schilsky, MD (PRINCIPAL_INVESTIGATOR)
Advent HealthOrlandoFlorida32803
Pamela Hedrick
[email protected]
Regino Gonzalez-Peralta, MD (PRINCIPAL_INVESTIGATOR)
Baylor College of MedicineHoustonTexas77030
Reza Amerinia
[email protected]
Sanjiv Harpavat, MD (PRINCIPAL_INVESTIGATOR)
Seattle Children's HospitalSeattleWashington98105
Sihoun Hahn, MD, PhD (PRINCIPAL_INVESTIGATOR)

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