Registry for Patients With Erdheim-Chester Disease and Other Histiocytoses

Part of paid clinical trials in New York, New York.

Sponsor
Memorial Sloan Kettering Cancer Center
Study ID
NCT03329274
Status
Recruiting
Apply to this trial

Conditions

  • Erdheim-Chester Disease

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Not accepted

Study Details

The investigators want to understand more about what kinds of health problems are caused by histiocytosis, what happens as a result of different treatments, and how ECD affects people's lives, their feelings and their attitudes. The investigators also want to learn how these things change over time for people with these conditions. To try to figure this out, doctors would like to collect information about people who have histiocytosis and how they are treated for this disease. Some participants will be asked to complete a brief interview over the telephone. Only a limited number of interviews will take place, and not everyone will be asked to participate in the interview. It is okay if the participant does not want to participate in the interview portion. If this is the case, the participant should let the study team member know when contacted.

Key Dates

Start date
Oct 26, 2017
Status verified
Jan 2026
Primary completion
Oct 31, 2026
Completion
Oct 31, 2026

Study Design

Enrollment
500 participants (estimated)

Arms

  • Arm: Patients with Erdheim-Chester Disease and Other Histiocytoses

Primary Outcome Measure

Create registry for Erdheim-Chester Disease and Other Histiocytoses [ Time Frame: 3 years ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Memorial Sloan Kettering Cancer CenterNew YorkNew York10065
Eli Diamond, PhD
212-610-0243
Katherine Panageas, MD
646-888-8237
Eli Diamond, MD (PRINCIPAL_INVESTIGATOR)

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