The International Registry for Leigh Syndrome

Part of paid clinical trials in Houston, Texas.

Sponsor
The University of Texas Health Science Center, Houston
Study ID
NCT03137355
Status
Recruiting
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Conditions

  • Leigh Disease
  • Leigh Syndrome
  • Leigh's Necrotizing Encephalopathy
  • Subacute Necrotizing Encephalomyelopathy
  • Subacute Necrotizing Encephalomyopathy

Eligibility Criteria

Sex
ALL
Age
0 Days - 100 Years
Healthy Volunteers
Not accepted

Study Details

The purpose of this study is to develop a database containing clinical and laboratory information for patients with Leigh syndrome. The goal is to provide a greater understanding of Leigh syndrome allowing further characterization of this disease.

Key Dates

Start date
Jun 17, 2015
Status verified
Nov 2023
Primary completion
Jun 17, 2030
Completion
Jun 17, 2030

Study Design

Enrollment
200 participants (estimated)

Arms

  • Arm: Leigh syndrome
    All people diagnosed with Leigh syndrome.

Primary Outcome Measure

Phenotypical characteristics of Leigh syndrome [ Time Frame: 10 years ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
The University of Texas Health Science Center at HoustonHoustonTexas77030
William Guerra
[email protected]
713-500-7164

Find similar trials in Houston, TX

By research site
The University of Texas Health Science Center at Houston· Houston, TX

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