Amish/Mennonite Research Contact Registry

Part of paid clinical trials in Pittsburgh, Pennsylvania.

Sponsor
University of Pittsburgh
Study ID
NCT02990572
Status
Recruiting
Apply to this trial

Conditions

Eligibility Criteria

Sex
ALL
Age
N/A - N/A
Healthy Volunteers
Accepted

Study Details

The purpose of this registry is to find members of the Plain Community who are interested in participating in future medical research studies. Having a registry makes it easier to contact and offer study participation to individuals who are appropriate for a new research study based on their own and their family medical history. Studies will focus on increasing knowledge about disorders affecting those who are Amish and Mennonite.

Key Dates

Start date
Oct 31, 2016
Status verified
Jan 2026
Primary completion
Dec 31, 2026
Completion
Dec 31, 2030

Study Design

Enrollment
1,000 participants (estimated)

Arms

  • Arm: Amish and Mennonite
    * Agree to allow access to past, current, and future medical records * Provide a detailed family health history * Provide contact information that may be used for future approach regarding research studies

Primary Outcome Measure

Accumulation and clinical definition of a patient population who are willing to participate in future research studies for which they are eligible. [ Time Frame: This registry is intended to be an ongoing resource for recruitment into future research studies and will be maintained up to 14 years. ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Children's Hospital of PittsburghPittsburghPennsylvania15224
Jerome Doerger, BFA, MS, MPH, LCGC
[email protected]
412-692-7349
Lina Ghaloul Gonzalez, MD
[email protected]

Find similar trials in Pittsburgh, PA

By condition
Leukemia (other)
By specialty
OncologyBlood cancer
By research site
Children's Hospital of Pittsburgh· Pittsburgh, PA

Related Studies