COPD Patient-Powered Research Network

Part of paid clinical trials in Washington D.C., District of Columbia.

Sponsor
COPD Foundation
Study ID
NCT02803242
Status
Recruiting
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Conditions

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Accepted

Interventions

  • Patient Reported Outcomes — OTHER

Study Details

The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.

Key Dates

Start date
Aug 31, 2014
Status verified
Mar 2022
Primary completion
Jan 31, 2025
Completion
Jan 31, 2030

Study Design

Enrollment
75,000 participants (estimated)

Primary Outcome Measure

Patient Reported Outcome Measurement Information System-29 (PROMIS-29) [ Time Frame: 15 years ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
COPD FoundationWashington D.C.District of Columbia20001
Gretchen M McCreary, MA
[email protected]
866-731-2673

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