Hairy Cell Leukemia Patient Data Registry

Part of paid clinical trials in Miami, Florida.

Sponsor
Ohio State University Comprehensive Cancer Center
Study ID
NCT02560883
Status
Recruiting
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Conditions

  • Leukemia, Other

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Not accepted

Study Details

The overall objective is to develop a clinical data registry that can be used to facilitate research with the ultimate goal of reducing the morbidity and/or mortality and improving the quality of life of patients diagnosed or living with hairy cell leukemia. With approximately 1,000 new cases of this rare disease identified in the US each year, HCL represents 2% of all cases of leukemia in adults. Considering the rarity of this chronic leukemia, the Hairy Cell Leukemia Foundation (HCLF), in partnership with investigators from its Centers of Excellence, seeks to develop a registry to help researchers identify new trends in outcomes, recognize the most effective treatments, discover previously unknown complications of the disease, and design clinical trials for new therapies.

Key Dates

Start date
Jan 2, 2013
Status verified
Apr 2025
Primary completion
Dec 31, 2030
Completion
Dec 31, 2030

Study Design

Enrollment
5,000 participants (estimated)

Primary Outcome Measure

Surveillance [ Time Frame: up to 25 years ]

Central Contacts

  • Hairy Cell Leukemia Research Data Registry
    614-685-4296
    [email protected]
  • Derick Campbell
    614-366-5196

Locations (4)

FacilityCityStateZIPSite coordinators
University of Miami/Soffer Clinical Research CenterMiamiFlorida33136
Peggy Gonzalez, M.S.Ed.
[email protected]
305-243-8091
Justin Taylor, M.D. (PRINCIPAL_INVESTIGATOR)
Mayo ClinicRochesterMinnesota55905
Matthew Holets
[email protected]
507-266-7208
Sameer Parikh, MD (PRINCIPAL_INVESTIGATOR)
University of Rochester /Wilmot Cancer InstituteRochesterNew York14642
Tina Faugh, AAS
[email protected]
585-273-3258
Clive Zent, MD (PRINCIPAL_INVESTIGATOR)
Ohio State University Comprehensive Cancer CenterColumbusOhio43210
Derick Campbell
[email protected]
614-366-5196
Michael Grever, MD (PRINCIPAL_INVESTIGATOR)

Find similar trials in Miami, FL

By research site
University of Miami/Soffer Clinical Research Center· Miami, FLMayo Clinic· Rochester, MNUniversity of Rochester /Wilmot Cancer Institute· Rochester, NYOhio State University Comprehensive Cancer Center· Columbus, OH

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