Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry

Part of paid clinical trials in Palo Alto, California.

Sponsor
New York Medical College
Study ID
NCT02249923
Status
Recruiting
Apply to this trial

Conditions

  • Pulmonary Arterial Hypertension
  • Pulmonary Vascular Disease

Eligibility Criteria

Sex
ALL
Age
1 Day - 21 Years
Healthy Volunteers
Not accepted

Study Details

Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.

Key Dates

Start date
Oct 31, 2014
Status verified
Feb 2025
Primary completion
Dec 31, 2030
Completion
Dec 31, 2031

Study Design

Enrollment
2,500 participants (estimated)

Arms

  • Arm: Pulmonary Arterial Hypertension

Primary Outcome Measure

Time to clinical worsening [ Time Frame: 12 months ]

Central Contacts

Locations (13)

FacilityCityStateZIPSite coordinators
Stanford University Medical CenterPalo AltoCalifornia-
Rachel Hopper, MD
[email protected]
Rachel Hopper, MD
University California San FranciscoSan FranciscoCalifornia-
Roberta Keller, MD
[email protected]
Roberta Keller, MD
Children's Hospital ColoradoAuroraColorado80045
David D. Ivy, MD
[email protected]
Robin Mascotti
[email protected]
David D Ivy, MD
Johns Hopkins All Children's Heart InstituteSt. PetersburgFlorida-
Grace Freire, MD
[email protected]
Grace Freire, MD
Johns Hopkins Children's CenterBaltimoreMaryland-
Jenny Schramm, MD
[email protected]
Allen Everett, MD
Boston Children's HospitalBostonMassachusetts-
Mary Mullen, MD
[email protected]
Mary Mullen, MD
Columbia University Medical CenterNew YorkNew York-
Usha Krishnan, MD
[email protected]
Usha Krishnan, MD
Maria Fareri Children's Hospital at WMC Health/Westchester Medical CenterNew YorkNew York-
Erika Rosenzweig, MD
[email protected]
Erika Rosenzweig
Cincinnati Children's Hospital Medical CenterCincinnatiOhio-
Russel Hirsch, MD
[email protected]
Russel Hirsch, MD
Children's Hospital of PhiladelphiaPhiladelphiaPennsylvania-
Catherine Avitabile, MD
[email protected]
Catherine Avitable, MD
Vanderbilt University Medical CenterNashvilleTennessee-
Eric Austin, MD
[email protected]
Eric Austin, MD
Texas Children'sHoustonTexas-
Nidhy Varghese, MD
[email protected]
Nidhy Varghese, MD
Seattle Children's HospitalSeattleWashington-
Delphine Yung, MD
[email protected]
Delphine Yung, MD

Find similar trials in Palo Alto, CA

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Stanford University Medical Center· Palo Alto, CAUniversity California San Francisco· San Francisco, CAChildren's Hospital Colorado· Aurora, COJohns Hopkins All Children's Heart Institute· St. Petersburg, FLJohns Hopkins Children's Center· Baltimore, MDBoston Children's Hospital· Boston, MA

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