Scleroderma Registry & Repository at the Hospital for Special Surgery

Part of paid clinical trials in New York, New York.

Sponsor
Hospital for Special Surgery, New York
Study ID
NCT01656447
Status
Recruiting
Apply to this trial

Conditions

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Accepted

Study Details

The overall objective of the Scleroderma Registry is to support and promote the basic science and clinical research of this complex rheumatic disease at the Hospital for Special Surgery (HSS). The registry facilitates our understanding of the clinical features, pathobiology, genetics of Scleroderma. This will ultimately lead to a potential treatment for this currently untreatable condition.

Key Dates

Start date
Aug 31, 2006
Status verified
Oct 2025
Primary completion
Jan 31, 2030
Completion
Jan 31, 2030

Study Design

Enrollment
300 participants (estimated)

Arms

  • Arm: Patients with Scleroderma
    Patients who have been diagnosed at any point in their life with Scleroderma will compose the cohort.

Primary Outcome Measure

Modified Rodnan Skin Score [ Time Frame: Baseline & follow-up visits during regularly scheduled appointments for up to 5 years ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Hospital for Special SurgeryNew YorkNew York10021
Eliza Pelrine, BA
[email protected]
212-774-2123
Robert Spiera, MD (PRINCIPAL_INVESTIGATOR)
Jessica Gordon, MD (SUB_INVESTIGATOR)

Find similar trials in New York, NY

By research site
Hospital for Special Surgery· New York, NY

Related Studies