Characteristics of Patients With Recessive Dystrophic Epidermolysis Bullosa

Part of paid clinical trials in Stanford, California.

Sponsor
Stanford University
Study ID
NCT01019148
Status
Recruiting

Conditions

  • Epidermolysis Bullosa Dystrophica

Eligibility Criteria

Sex
ALL
Age
N/A - N/A
Healthy Volunteers
Not accepted

Study Details

Recessive dystrophic epidermolysis bullosa (RDEB) is a disease caused by genetic mutations in the gene for type VII collagen. Patients with RDEB develop large, severely painful blisters and open wounds from minor trauma to their skin. We are screening subjects with RDEB to evaluate characteristics of the subjects and their cells in order to develop new strategies of therapy and determine whether subjects could be candidates for treatment studies.

Key Dates

Start date
Nov 10, 2009
Status verified
Apr 2026
Primary completion
Dec 31, 2029
Completion
Dec 31, 2029

Study Design

Enrollment
70 participants (estimated)

Primary Outcome Measure

Identification of subjects with Recessive Dystrophic Epidermolysis Bullosa [ Time Frame: 10 years ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
Stanford University School of MedicineStanfordCalifornia94305
Irene Bailey-Healy
(650) 721-7149
Jean Tang, MD, PhD (PRINCIPAL_INVESTIGATOR)
M. Peter Marinkovich, MD (SUB_INVESTIGATOR)
Anthony Oro, MD (SUB_INVESTIGATOR)

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