NARCOMS Registry: A Multiple Sclerosis Registry

Part of paid clinical trials in Dallas, Texas.

Sponsor
University of Texas Southwestern Medical Center
Study ID
NCT01018537
Status
Recruiting
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Conditions

Eligibility Criteria

Sex
ALL
Age
18 Years - N/A
Healthy Volunteers
Not accepted

Study Details

This project is based on the idea that we can learn about the complexities of MS by following disease and treatment patterns in a large group of people over several years. The information gathered is used for research only. Results are presented in summary form only. All details submitted by registry participants is strictly confidential. To participate in NARCOMS complete the baseline enrollment survey online through www.narcoms.org (or directly using the following link: https://redcap.link/py2rnyyn) or you can request a mail-in survey be sent to you by emailing [email protected]. You will be asked to update your information, online or by mail, twice a year. Each update survey typically takes less than 20 minutes to complete. There is no cost to participate. For your participation you are offered a free subscription to the NARCOMS quarterly magazine, NARCOMS Now. NARCOMS Now provides a reliable source of information about the latest in MS research and disease management. You can stop participating in the registry at any time. You may also receive additional surveys or information on clinical trials. You are not obligated to participate and these additional studies will always come directly from NARCOMS. Your contact information will not be shared or sold to other parties.

Key Dates

Start date
Jan 31, 1996
Status verified
Nov 2025
Primary completion
Dec 31, 2050
Completion
Dec 31, 2050

Study Design

Enrollment
50,000 participants (estimated)

Primary Outcome Measure

Disease progression over time of follow up [ Time Frame: up to 15 years ]

Central Contacts

Locations (1)

FacilityCityStateZIPSite coordinators
UT Southwestern Medical CenterDallasTexas75390-8806
NARCOMS Team
[email protected]
214-648-4583
Amber Salter, Ph.D. (PRINCIPAL_INVESTIGATOR)

Find similar trials in Dallas, TX

By condition
Multiple sclerosis
By specialty
NeurologyBrain disordersAutoimmune disease
By research site
UT Southwestern Medical Center· Dallas, TX

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